The Aarskog Foundation

The Aarskog Foundation

Website
www.aarskogsyndromefoundation.co.uk/about.html

We are a Scottish based Charity that powers a patient and parent run network of children and families, living with the Rare Disease, Aarskog Syndrome. Our primary purposes are in identifying and supporting our patients, carriers and families living with Aarskog Syndrome, by creating better provision and support regarding access to long term, lifelong healthcare and management, education and improved research pathways.